November 16 – 22, 2018 1st sight seeing after hospital discharge!

November 16 (F)

Today was my outpatient consultation, but from today, my doctor will be mama doctor, Kitabayashi Sensei. My schedule was 10:00 am JST but I have to go to the hospital one hour early for the blood and urine test. After the test, I decided to go to the 14^th floor to greet the nurses. Luckily, one of the nephrologists came and he said that he will call Nagatsuji Sensei.

So I was able to meet Nagatsuji Sensei and he gave me a consultation while we are standing in the front desk, he said that he will be writing it down on my records but I have to attend to the consultation with Kitabayashi Sensei. The consultation with mama doctor was fine and she said that she will not be changing the dosage of the medicine for now. She also permitted me to go to a hot spring or go out for sightseeing but I should have company and I should not go to a far place yet. I cannot also eat sushi or raw foods for now she said.

Since I am going to change the pharmacy (from now, I will be using the pharmacy near my apartment), I decided to go to Osaka Castle first before going home. I have to walk from the station to the Osaka Park. It was a good thing that the weather was fine, not too sunny and not too cold, but I did sweat a lot. I got easily tired and my leg muscles are aching. I was about to give up because there stairs going to the main castle, but I was able to climb up after many breaks. I did many breaks while walking.

Then I went to the pharmacy and give the prescriptions, since they will be packing the medicines per morning and night time, it will take sometime, and it is a good thing for me because they were willing to deliver it to my house, but I said just call me and I will come to pick the medicines. The pharmacists are so nice and they give me a thorough explanation of the medicines, and they even advise me to get the mobile application of my medicine booklet. (wow, high-tech!)

I walk a lot and when I got home I am very tired and my muscles are aching.

November 17 (S)

It is a good thing that I am on a rest day today. My body got tired from yesterday and my muscles are aching. At some point, I am hearing something ringing in my ear like a “chi—n” sound for about 10 seconds. I don’t know what is this, but after that, I am starting o feel a little dizzy.

November 18 (Su)

I woke up early to watch the Sunday Mass live via SNS from Quiapo church.

Today my stomach is aching and I have really bad LBM, it is so bad that it was watery and when I fart I have a clear substance discharging out of my body. I think it is oil or I don’t know. It has a consistency like of an egg white. I decided to have my stomach rest and not eat anything except for soup.  And up to today, my leg muscles are aching from walking too much the other day.

November 19 (M)

I was surprised to see Christmas decorations on the 1st floor of the apartment. Oh my! it is Christmas time! 

My leg muscles are getting better, I have to exercise it more so I can build some stamina. I still have the white substance with my fart. But after researching it, it was a good thing that it is transparent, if there is color pink, then it means that my intestines are damaged. The article that I read also states that it is normal because I had a bad LBM. But today it is starting to decrease a little. I hope that it will stop today.

November 20 (T)

The discharge with my fast has stopped, and as I thought my stomach is getting okay, but after eating breakfast my stomach really hurt. I have to take painkillers. I took the mild one first but to no avail, I have to take the strong ones after 2 hours. Recently, every day I have to take the strong painkillers after lunch because my stomach is aching. Though the painkillers took effect, I still have a strange feeling in my stomach.

November 21 (W)

Yesterday was a tough day dealing with my stomach. I have to eat little amount to today because I almost went to the toilet 6 times after breakfast. I tried to avoid oily and fatty foods but I am still having LBM. Upon reading the medicine booklet and as per explanation of the pharmacist, most of the medicines that I am taking may have LBM as a side effect. But I have no other choice but to take all the medicines since I need it. I can deal with the LBM but I hope that my stomach will not hurt.

November 22 (Th)

Today I have a little bit of high blood pressure. I thought that I had it regulated recently because my BPs were good, and I also reviewed the data from the smartwatch. Well, I think there are days that I have high blood pressures too, but the good thing is that I am not feeling dizzy or anything serious.

My medicine dosage is still at:

🌅Morning: 10mg of Predonine, 2 capsules of Cellcept, anti-osteoporosis, half of blood pressure medicine, medicine for uric acid, intestinal medicine, Plaquenil, and additional medicine for infection every Monday, Wednesday and Friday. 

🌜Evening: 7.5mg of Predonine, 3 capsules of Prograf and 2 capsules of Cellcept, ferrous sulfate, anti-cholesterol medicine, half of a blood pressure medicine, zinc supplement. Sleeping pills #1 & #2.

November 8-15, 2018

November 8 (Th)

As expected, in the morning I still now having LBM in the morning, but I have to do my best. I took the strong painkiller but I can still feel my stomach moves. Since today is Thursday and tomorrow is our rest day, I and my Indian friend decided to go to a spa. She is a vegetarian, so she has to cook our dinner. I just brought some muffins and we made this dessert. She also invited our friend from work and her former classmate. We finished dinner late so we weren’t able to go to the spa.

November 9 (F)

It is starting to get cold here, so I decided to buy an electric blanket. I think this is effective and power saving than using the regular heater. Plus the heater can dry my skin and throat.

November 10 (S)

I’m starting to feel acidic in the evening. Maybe because I ate too much?! I am used to eating small portions only. I am having a hard time sleeping. It feels like the food that I ate will go back, I am feeling nauseous.

November 11 (Su)

Like the usual, I am still having LBM in the morning, but today, my stomach, back, and shoulders hurt too. Recently, I am taking the strong pain reliever after I ate lunch. I am also feeling dizzy, especially when I stand up.

November 12 (M)

Today my stomach really hurts that I took the strong pain reliever twice. I also noticed that my bruises are coming out. Some of it came out even though I didn’t bump into anything.

November 13 (T)

I am feeling better today, but still, as a protection from pain, I am taking pain relievers. My friend gave me this smartwatch. It can be linked to a mobile phone application to monitor the pulse, blood pressure, steps per day and hours slept. I was surprised that the pulse and blood pressure is measured every after 30 minutes.

November 14 (W)

Last night I tried to sleep without taking the sleeping pills #1 & #2, but it failed. I had to have troubles with sleeping, when I realized, it was already 12:00 am, then when I go to the toilet, I am having a hard time falling back to sleep. I am feeling tired today.

November 15 (Th)

This past week, my blood pressure averaged 140/110. This is high compared to the normal blood pressure of my age, 120/80. But when I take my medicines, my blood pressure is getting better. Sometimes, I can feel that my nape hurt, I think at those times, my blood pressure is going up.

I also watched a television program that if a patient is using strong pain relievers or steroids, it can lead to the side effect of having LBM. I have to ask mama doctor, Kitabayashi Sensei, tomorrow. I will be going for an outpatient consultation tomorrow.

My medicine dosage is still at:

🌅Morning: 10mg of Predonine, 2 capsules of Cellcept, anti-osteoporosis, half of blood pressure medicine, medicine for uric acid, intestinal medicine, Plaquenil, and additional medicine for infection every Monday, Wednesday and Friday. 

🌜Evening: 7.5mg of Predonine, 3 capsules of Prograf and 2 capsules of Cellcept, ferrous sulfate, anti-cholesterol medicine, half of a blood pressure medicine, zinc supplement. Sleeping pills #1 & #2.

November 1-7, 2018

November 1 (Th)

Today is my schedule for a checkup. It is starting to get cold here that is why I am dressed like this. Today is the last day of my outpatient consultation with Nagatsuji Sensei. As a service, we had a 30-minute consultation. I also have to get my medical certificate for Philhealth.  So he has to reprint as I correct the English version. He was so kind though to rewrite it on the spot. He said that if ever that I will be confined again, let him be my attending physician again. It is sad but I have to move my appointments every Friday. So starting Nov. 16, my doctor will be mama doctor, Kitabayashi Sensei.

My medicine also decreased. The night dosage of anti-cholesterol was taken out.  A good sign for me.

I bought sweets and had dinner with my friends. We had a vegetarian pasta and the special melon bread that iI bought from the specialty store in front of the hospital.

November 2 (F)

Maybe I got tired of yesterday, my leg muscles and back is hurting. And I am still having hemorrhages on my legs. Also, I feel like I have a cold in the evening, but when I measure my temperature, it is normal.  

November 3 (S)

I am feeling fine today so I tried to make Okonomiyaki. (Japanese pancake made out of cabbage). I tried but I think my mixture was not in the right proportion.

November 4 (Sun)

I got a present from my Indian friend. She went to Mt. Kouya to see momiji (red leaves). Momiji is famous when it is fall. As the weather temperature falls, the leaves turn red. I also wanted to go, but my doctors still said that I cannot go sightseeing, or to places with many people.

November 5 (M)

Recently, I am still having high blood pressure in the morning and in the evening. Average blood pressure for this week is 140/100.

November 6 (T)

My friend and I ate yakiniku (beef bbq) for dinner. I thought that if it is grilled there will be no oil, but my friend said that if it is high-quality meat there is more fats. I started to have LBM at 5:00 am JST. I need to drink loperamide but my LBM was not stopped. My stomach was hurting. I have to drink painkillers so that I cannot feel my stomach pain.

November 7 (W)

Today’s dinner was sushi and hot pot. It was a long time since I ate these. I forgot to ask my doctor if I can eat raw foods, but I think it will be fine. I ate my favorite Ootoro (tuna belly). And as my friend said, will I be okay? Because this ootoro has many fats and oil. But I guess I will be fine. But I suddenly feel nape pain; I think my blood pressure shoot up. I have to wait to get home so I can drink my medicines.

My new medicine dosage is:

🌅Morning: 10mg of Predonine, 2 capsules of Cellcept, anti-osteoporosis, anti-cholesterol medicine, half of blood pressure medicine, medicine for uric acid, intestinal medicine, Plaquenil, and additional medicine for infection every Monday, Wednesday and Friday. 

🌜Evening: 7.5mg of Predonine, 3 capsules of Prograf and 2 capsules of Cellcept, ferrous sulfate, half of a blood pressure medicine, zinc supplement. Sleeping pills #1 & #2.

October 25-31, 2018

October 25 (TH)

I was invited by my Indian friend and French friend to eat because my French friend ended resign from our workplace. We ate French food made by her. She even baked this cake. It was delicious. I was feeling good that day because I took painkillers that day so I went with them.

October 26 (F)

I am still having bruises even though I haven’t bumped into anything. The last time I visited my doctor, he said that it was due to the side effect of steroids.

October 27 (S)

I don’t know but I am still having LBM especially at morning then at night my stomach hurts and I am taking the stronger painkiller.

October 28 (Su)

It is getting cold nowadays maybe that is why I’m feeling that I have a fever, but when I measure my body temperature it was normal. I have to take care not to catch a cold, especially my immune system is weak.

October 29 (M)

I and my Indian friend went to her house and ate dinner and then we went to the spa house! The water in the bath is really hot spring water and there was this special bath that is aloe vera flavored. Then there is also a mud pack sauna. It has been a while that I went to a spa house. We were there for 3 hours. I really had a relaxing time. Nothing beats a full stomach then a hot bath. I slept really well after that.

October 30 (T)

Today I really had a bad LBM, I went to the toilet more than 7 times. The doctor said that I should try to take the loperamide but it had a reverse effect on me. And I am feeling acidic and I was nauseous.

October 31 (W)

Recently, I am having high blood pressure, but when I drink my medicines it normalizes.

In my workplace, I had a little accident. When a child was off boarding the car, he suddenly jumped at me and he was so big that I lost my balance and fell down, I was lucky that everything happened in a slow motion like pace. I managed to use my left arm then I bumped my back and my head. I hurt so much. I was thinking to call or go to the hospital. But I was not feeling nauseous or having a bad headache. Since I have an appointment tomorrow for an outpatient consultation, I decided to wait until tomorrow. But really my back and arm ache that I took painkillers.

My medicine dosage is:

🌅Morning: 10mg of Predonine, 2 capsules of Cellcept, anti-osteoporosis, anti-cholesterol medicine, half of blood pressure medicine, medicine for uric acid, intestinal medicine, Plaquenil, and additional medicine for infection every Monday, Wednesday and Friday. 

🌜Evening: 7.5mg of Predonine, 3 capsules of Prograf and 2 capsules of Cellcept, ferrous sulfate, anti-cholesterol medicine, half of a blood pressure medicine, zinc supplement. Sleeping pills #1 & #2.