September 27, 2018 (Thursday) - I wasn't able to go home today

At around 2:00 am JST I started vomiting and I don’t know why.😱😰 💀

I just ate the dinner from yesterday, hayashi rice (beef and mushroom) and a mochi mochi bread🍞. I haven’t slept well enough because I was vomiting until 7:00 am JST. I vomited so much that I don’t have enough energy left. 😥I wanted to sleep but my body cannot relax, and I feel like there is something in my chest.

Since my doctors were considering that the vomiting and the LBM might be a sign of medicine allergy, they decided to decrease the dosage of Cellcept. From 6 capsules a day, down to 4 capsules a day. Then, I will be under observation. I don't know if this is a good sign or not. 😞

We are talking about the timing of my discharge. As expected, today is not a day for discharge. Upon consultation, they said that it is better for me to go out of the hospital on Monday, October 1, 2018.

Also, if anything were to happen to me after my discharge, I can go back anytime, and the doctors will be here in the ward. Come to think of it, they do have a point on that. 💬Papa doctor, Konishi Sensei, is joking to me that I can still extend up to 1 month. 😂 Or I can go here every week for outpatient consultation with Nagatsuji Sensei. 😜

I had a visitor, Miyake san, I was really sorry because I wasn’t able to see her.🙇I was really not feeling well, I cannot speak well, and I have been sleeping almost the whole day. 💤She is so kind to remember me and gave me these biscuits.

I wasn’t able to neither eat nor drink anything at all today. My medicines too were given via shots. 💉Mama doctor, Kitabayashi Sensei, advised me not to have intake because it will just go out, but as much as possible, I have to drink water💧. Then, I spent the whole afternoon and night sleeping.💤

I am praying that I will be well tomorrow. 🙏

September 24-26, 2018 Renal Biopsy

September 24, 2018 (Monday)

Today is a rainy day. ☔I just rested my body in preparation for the Renal Biopsy. I just spend the rest of the day sleeping alone in the 4 person room. 😴Though at some point I need to take painkillers💊 because my stomach still aches and I am still having slight LBM.

September 25, 2018 (Tuesday)

I was lucky enough that my LBM was controlled and we can go with the planned Renal Biopsy. 👌But before the procedure, I got my blood samples taken. Some samples are for safekeeping, like a file of blood.📁 In the Renal Biopsy, they are going to check the condition of my kidneys after the medical treatments that I have received.

Though there was no time, I still managed to take a shower. I have a urine catheter attached to me, because 10 hours after the procedure, I should be lying down and cannot be out of bed.

I was taken to the room where the procedure will be done. The preparations were long, but the actual sample taking just took only 10 minutes, and it was done by Nagatsuji Sensei. Kitabayashi Sensei, Yamazaki Sensei, Inoue Sensei, and for the 1^st time I met, Morikawa Sensei, were there to assist him in doing the procedure. Now I have met everybody in the Kidney Internal Medicine Division. 🙋

I was able to eat my lunch.😋 I was so hungry since I haven’t eaten since breakfast. But as the night falls, my stomach is hurting that I was not able to eat my dinner.😢 I have to take a painkiller, Ririka, but it was not enough, I have to take the stronger one.

Nagatsuji Sensei gave me the permission to get out of bed, even though 10 hours have not passed, if ever I feel like having LBM.😭 I did use that permission, at around 8:30 pm JST, an hour early than the 10 hour period.  😩

Luckily I fell asleep as the painkillers took effect.

September 26, 2018 (Wednesday)

I have another blood test again today to see if there is any excess bleeding. So, this is what it looks like. Today this gauze will be taken out but I was advised by Nagatsuji Sensei not to take a bath today.😉

Today, I got a visitor. If you can still remember Tokunaga san, the one I was in the same room from 2 weeks ago. She came here for her out patient consultation. She was so kind enough to visit and bring me these. Nagatsuji Sensei gave me the permission to eat.😀

Nagatsuji Sensei explained to me the result of the Renal Biopsy. 💭This is a picture of the sample taken from me.😲 The damaged parts cannot be recovered, 💦but he said that I had a very good reaction from treatment that I have undergone.

There is still the chance that my kidneys will be worse if I will not take good care of them. 😳I have to take care of myself. Take extra precaution on what I eat because there is a limit on salt, sugar, and protein intake.😩 Proper exercise and avoid stress. He also said that I will be having my outpatient consultations here, because it is not possible to have a small clinic to be looking after me, and that they know my history. Thank God if that is the case.🙏🙇

September 23, 2018 (Sunday)

Good morning! I woke up feeling fine.💪 Recently I am having long hours of sleep and I am sleeping well without toilet breaks in the middle of the night. 👌

The breakfast for today is sautéed beans, bread, yogurt, canned peaches, and tea. I ate well today. 😀Then I took my medicines;  10mg of Predonine, 3 capsules of Cellcept, anti-osteoporosis, anti-cholesterol medicine, half of blood pressure medicine, medicine for uric acid, intestinal medicine, Plaquenil, and medicine for LBM. 

After I took a bath I tossed in my laundry. 👕👖And it was finished just before lunch. I ate rice and tamagoyaki for lunch. There were a salad and boiled potato but I didn’t eat it, because I think it was salty. I took the noon dosage of the medicine for LBM.

After I folded my clothes, I decided to take a walk in the garden. 🏃I notice that the bigger garden is now open after it was damaged by the strong typhoon. So here it is now, some plants cut off, the branches of the trees have decreased. 🌳But it is still pretty.

I tried updating my blog until dinner.💻 (Sorry for the late posts) I had miso flavored grilled fish, rice and canned oranges for dinner. Then my medicines; 10mg of Predonine, 3 capsules of Prograf and 3 capsules of Cellcept, ferrous sulfate, anti-cholesterol medicine, half of a blood pressure medicine, and the medicine for LBM.

Today, I didn’t have LBM, and I am so thankful.🙆 I think I am getting better. But, I am still trying to control my food intake because I am afraid that my stomach will hurt and that I will have LBM again. I am praying that this will continue.

Since there were no things left to do, I will be sleeping early today. After praying,🙏 I took my sleeping pills #1 & #2 at 9:32 pm JST.

Good night!💤

September 22, 2018 (Saturday)

Good rainy morning. I did have a good sleep! I had LBM too much that my body weight has decreased from 52 kilos down to 51 kilos.😅

Thank God I got my appetite back,💪 plus I like the tomato omelet served for breakfast.😋 I ate it with cauliflower soup, yogurt, and a piece of bread. Then I took my medicines;  10mg of Predonine, 3 capsules of Cellcept, anti-osteoporosis, anti-cholesterol medicine, half of blood pressure medicine, medicine for uric acid, intestinal medicine, Plaquenil, and medicine for LBM. 

I am still having LBM, but thankfully it is not water like anymore, the waste is starting to have shape. I think it is a good sign.🙆

Today is Saturday so the doctors will be here half day only. Nagatsuji Sensei came in for his rounds. He is still saying that I got this LBM because I ate too much oily food.😹 But that was how many days ago?!💦  He said that I have to rest and he hopes that when he comes back on Tuesday (Monday is a holiday here), my LBM will be gone and that we can be able to perform the renal biopsy.😦

Not having a stomach ache, I ate well for lunch. It was rice, mabo tofu, stir-fried rice noodles, and canned oranges. Then, I took the noon dosage of the medicine for LBM.😄

I felt recharged, or I thought so, but I had LBM again, twice after lunch. When will this be healed?😳

For a change of environment, I went to the garden to have some fresh air and to exercise my aching legs. 😇Luckily the weather improved, it was not that hot and the rain had stopped.

It was grilled salmon for dinner! Lucky! This is one of my favorites.😋 Then I ate rice and the canned peaches, and cookies. Then my medicines; 10mg of Predonine, 3 capsules of Prograf and 3 capsules of Cellcept, ferrous sulfate, anti-cholesterol medicine, half of a blood pressure medicine, and the medicine for LBM.

I am praying that I will not have LBM anymore and that everything will be according to the planned schedule and hopefully I will be discharged soon.🙏

Since there was nothing to do I watched a movie 💻and I slept in early. I took my sleeping pills #1 & #2 at 9:00 pm JST.💤

Good night for now.

September 21, 2018 (Friday)

Good morning! I would like to greet my brother a Happy Birthday!👦🎈🎉

I woke up with stomach pain.😓 I had my blood and urine samples drawn for the regular laboratory checks. I still have LBM. I don’t know why but it was from yesterday.

I had my breakfast; I ate a piece of bread, sautéed vegetables, canned peaches, and yogurt. I know I have to eat and drink more because I am taking out much waste, so I tried hard eating even though my stomach hurts.😿 I took my normal medicines;  10mg of Predonine, 3 capsules of Cellcept, anti-osteoporosis, anti-cholesterol medicine, half of blood pressure medicine, medicine for uric acid, intestinal medicine, Plaquenil, the additional pill for anti-infection, and medicine for LBM. 

Nagatsuji Sensei came and said that there is no need for me to undergo the big intestine camera test. Whew!🙆 What a relief. Days ago, he explained the preparation for that procedure; I was thinking that it will be really bothersome to do that. 🙌Thank God I don’t have to do that. And then I have to sign the acknowledgement for the renal biopsy.✏ But he said that, if I still have LBM on Monday we will have to cancel the biopsy. If that happens the day of my discharge will be affected. 😱

I ate sweet and sour fish and rice for lunch. I didn’t eat the other side dishes.  I took the noon dosage of the medicine for LBM.

Every time I eat and drink, my stomach hurts. 😿And, it seems that every time I eat, it comes out. 😓The last LBM was after I ate lunch, and thank God that it stopped from there.😫

But still, because of my aching stomach, I only ate a little in the evening. I ate rice and pork tonkatsu. Then had my medicines; 10mg of Predonine, 3 capsules of Prograf and 3 capsules of Cellcept, ferrous sulfate, anti-cholesterol medicine, half of a blood pressure medicine, and the medicine for LBM.

I am praying that this will stop,🙏 because it is really hard, and I am losing too much energy. My legs are still having muscle pain due to over exhaustion from the day I visited my house.

I took my sleeping pills #1 & #2 at 11:00 pm JST.😴

*sorry for this very late post. recently I am not feeling well.

September 20, 2018 (Thursday)

Today is a gloomy day or I guess I was just tired.😓 I tried to hold it in but to no avail at 3:00 am JST, I vomited. 💧I felt a little relief, but it was followed by almost hourly LBM and vomiting up to 9:00 am JST.💦

I was really tired and I have no energy left.😿 It seems like I can’t stand because my body muscles are aching from yesterday, especially my legs, so I was having a hard time going to the toilet.  I was crying to my nurse 😰because I am really having a very painful and difficult situation. She said because I ate too much oily food again. (yes, the tempura🍤 from yesterday), but I have already taken out so many wastes that when I go to the toilet, I can’t take out anything more. She said that we have to wait for Nagatsuji Sensei for further consultation and prescription.

 I skipped breakfast as advised by my nurse but I took my medicines; 10mg of Predonine, 3 capsules of Cellcept, anti-osteoporosis, anti-cholesterol medicine, half of blood pressure medicine, medicine for uric acid, intestinal medicine, Plaquenil, and medicine for LBM. 

Since then early in the morning, I haven’t enough sleep. 😵I tried to sleep in again, but I cannot. My stomach is moving and it really aches, and the feeling of wanting to vomit is still left. I was not able to take a bath at my regular time.

When Nagatsuji Sensei came for his rounds, I was lying down and half asleep. He said it maybe from the excitement and the food I ate yesterday.😱 He cannot prescribe any additional antibiotic. He said that it is the best antibiotic, but he said he will try to change the brand. He also said that I can drink Ririka, and try to take a rest. 💤If it still hurts then I can take the other painkiller.💊 I asked him what is that color green 😱that I am vomiting; he said that it might be some bile from the gall bladder. Thank God it was that. I thought it was a bad sign.

It seems that the medicines are taking effect.😩 I tried to eat lunch, and to my surprise, it was chicken karaage!🙀 My nurse told me to better skip it since it is fried. I just had macaroni salad and some vegetables and steamed green vegetables. I took the noon dosage of the medicine for LBM.

After my bath, I took another painkiller💊, and I was able to sleep until late evening. 💤

Nagatsuji Sensei came to check on me again, he said rest more and depending on my condition on Monday, 24^th , whether we can perform the renal biopsy or not on the 25^th. So that means, the date of my discharge might change! OMG!🙀😱

I tried to eat dinner; luckily it was an easy to eat food. 😔I ate rice and tofu in egg soup. Then  took my medicines; 10mg of Predonine, 3 capsules of Prograf and 3 capsules of Cellcept, ferrous sulfate, anti-cholesterol medicine, half of a blood pressure medicine, and the medicine for LBM.

But then again I had LBM twice. Thank God that the painkillers are working for me. I took my sleeping pills #1 & #2 at 10:00 pm JST.

I know it was my fault for overeating and eating oily food.😩  But I didn't think that it will be like this. 💦 I thought it was gone and since there was nothing seen wrong in the CT scan. I am really praying that this will be over. 🙏Today was really though. 

September 19, 2018 (Wednesday)

Good morning! 👧This is the day that I am going to visit my house🏡 after almost 4 months. I am feeling good and excited.💃

I took my breakfast, a piece of bread🍞 and marmalade, bok choy soup, yogurt, and canned peaches. Then took my medicines;  10mg of Predonine, 3 capsules of Cellcept, anti-osteoporosis, anti-cholesterol medicine, half of blood pressure medicine, medicine for uric acid, intestinal medicine, Plaquenil, the additional pill for anti-infection, and medicine for LBM. I hope this breakfast will last up to lunch, I know I will have a long journey.👌

I prepared the things that I have to bring. I also checked the route that I will take. It is my first time to go home so I don’t know the way.😊

I waited for the nurse and doctors rounds. My nurse gave me the afternoon medicine and the painkiller just in case my stomach will hurt. 💊But I will carry it as a protection as advised by Nagatsuji Sensei. He said that I should be careful of infection and I should wear a mask. I should also be careful of the food that I will eat, no raw food, no oily food, be careful of salt content and many other precautions😆, like a father 👨letting his daughter go on a 1^st field trip. Well, I know it is for me, and I appreciate that. 💕  

So I went on my way, 🙆and everyone is very happy. I walk to the train station. As expected, that it is very different outside. I haven’t reached the train station yet but I am starting to sweat and my legs are getting tired.😷 And when I reached the train station, there was no elevator on that side. I took the stairs very slowly, and I was running out of breath. I have to sit down as I wait for the train.🚆 I have to transfer to the subway🚇; I have to take stairs again. I haven’t reached my house yet and I am so tired already. I arrived at the station nearest my house, and I have to walk, but I was at a lost. I don’t know where to walk towards too. I need to consult Google maps 😂 And the 8-minute walk took me almost 20 minutes. I am starting to feel leg cramps so I have to walk very slowly, plus I am carrying my things so I think it also slows me down. I finally arrived, luckily I didn’t have muscle cramps. I sweated a lot and very tired.

This is what I had for lunch. 😋A ladies meal of tempura and rice paired with udon and beef! It has been a while since I ate these foods. 😁This is the standard serving for female. I know that this is too much for lunch as compared to the hospital food.  But let us consider😹 this as a cheat day. I took the noon dosage of the medicine for LBM.

I was waiting for this muscle training ball to be delivered to the hospital, but it was delivered to my house instead.

I went back to my house to fix my things a little. I also took a shower because I sweated a lot. For almost 4 months without moving so hard and without exercise, my body is getting tired easily😓. 

This time I have to go and look for an elevator. Though it took me time and additional walking, I did manage to get back to the hospital without using stairs in the subway stations🚇.  I am so tired that I haven’t remembered to take pictures📷. Sorry guys.

When I got back at the hospital🏥, I can feel my body is so tired and my leg muscles are aching.😵 My left leg is starting to have cramps so I have to take a rest at the waiting area at the 1^st floor. 

The nurses are very happy that I was able to go back safe and I didn’t have to drink the painkiller.🙌 I had buttered white fish and rice for dinner. Then I  had my medicines; 10mg of Predonine, 3 capsules of Prograf and 3 capsules of Cellcept, ferrous sulfate, anti-cholesterol medicine, half of a blood pressure medicine, and the medicine for LBM.

I am so tired, 😳that I can sleep even without sleeping pills, but I still took it at around 10:00 pm JST.

Thank God that even though I was so tired, I managed to go back safely.🙇🙏

September 18, 2018 (Tuesday)

I am feeling better after I have slept for almost 12 hours.😌 I hope that my LBM will be gone. I had my blood and urine samples collected for the regular laboratory examination.

The breakfast for today is 2 pieces bread, margarine and marmalade, sautéed spinach, canned oranges, yogurt, and tea. I think my stomach could not digest the spinach so I didn’t eat it.💦 I just eat a piece of bread with marmalade, then the fruit and the yogurt.🍞 Then I took my medicines; 10mg of Predonine, 3 capsules of Cellcept, anti-osteoporosis, anti-cholesterol medicine, half of blood pressure medicine, medicine for uric acid, intestinal medicine, Plaquenil, and medicine for LBM. 

Based on the blood test result, my white blood cells count is increasing so I got the permission to go out tomorrow! 🙆But my potassium is in the maximum level so Nagatsuji Sensei might add another medicine for this and I am will still undergo the limited potassium diet. I also had my CT scan today. The result was good,✌ there was no swelling of my intestines but still, there is a little accumulated water. It will be naturally washed out. 😌

My nurse from the other day told me that she had mistakenly used a different specimen tube for my stool.😱 So I have to give out another specimen again. I feel that my LBM has improved and might not be able to give out specimen today.😶 But luckily it was on time.

I had my lunch; 100g rice, grilled salted salmon, boiled eggplant, radish salad, sweetened red beans, and tea. I ate it all at a very slow manner.😹 I hope that my stomach will not be upset. I took the noon dosage of the medicine for LBM.

Since my headset was broken, I ordered a new one online and it was delivered today. It was fast! Now I can talk to my family hands-free again. 😀

As planned I will be visiting my house tomorrow, ✌so I prepared the unneeded items. It was quite a lot, well as expected; it is for almost 4 months.👕👖 But I cannot carry it all at once tomorrow. I got a bag and a paper bag full of clothes and other things.👜👜 It will be quite heavy I think.

Nagatsuji Sensei came for his afternoon rounds and said that the 24-hour urine test was not successful because the collected urine was too little. 😂The collection period was yesterday, the day that I had LBM so I wasn’t able to collect the urine fully. Then he saw me drinking Iced Café Late, he said that it was not good for my stomach yet because it is cold and might cause stomach upset. I said that I will drink it up to later and will add water. 😏😹

The dinner is 100g rice, tofu burger, stir-fried vegetables, Chinese cabbage salad, cookies, canned oranges, and tea. I just ate the rice, tofu burger, and oranges. I can still feel that my stomach is still full from lunch.😿 Then I took my medicines; 10mg of Predonine, 3 capsules of Prograf and 3 capsules of Cellcept, ferrous sulfate, anti-cholesterol medicine, half of a blood pressure medicine, and the medicine for LBM.

Thank God that my LBM has stopped and with this, I will be able to go and visit my house tomorrow! Praying that tomorrow will be a good day. 🙏

I took my sleeping pills #1 & #2 at 11:00 pm JST.

Good night and I am excited for tomorrow.

100th post

I noticed that I already posted 100 entries here in the last almost 4 months. Thank you for reading this blog and supporting me in my journey in fighting Systemic lupus erythematosus (SLE). I am planning to continue this even after I got discharged from the hospital. If nothing serious happens, the expected discharge date is still on September 27, 2018.

Thank you for your continued love and prayers. 

September 17, 2018 (Monday)

Good morning and I am feeling good.🙆 Can you see the newly trimmed bangs?💇

It is a holiday today here in Japan. They are celebrating a day to for the elderly people.👴👵 It is like a grand parent’s day in the Philippines, except that it is recognized as a national holiday here.

The breakfast for today is 2 pieces bread, sautéed shrimp and green vegetables, margarine and strawberry jam, yogurt, canned peaches, and tea. I toasted a piece of bread then put strawberry jam and ate the fruit and yogurt.🍞 Then my dessert; 10mg of Predonine, 3 capsules of Cellcept, anti-osteoporosis, anti-cholesterol medicine, half of blood pressure medicine, medicine for uric acid, intestinal medicine, Plaquenil, the additional pill for anti-infection, and medicine for LBM. After that, my stomach hurt a little, but still bearable.😣

After my bath, my nurse gave me the IV so that I will not be dehydrated due to LBM. I hope this will be the last.🙏

I was surprised because it is a holiday but Nagatsuji Sensei is here.😃 He said he is in charge of the ward today since the other doctors are on a holiday. Since I am feeling well, he said that today we can take out the IV. 🙆 Since it was not a busy day, we had the chance to talk well today and I managed to ask a lot of questions, he was kind enough to answer and explain everything.

My nurse is also late to take out the IV, maybe I and Nagatsuji Sensei talked so long that he forgot to input the instruction to take out the IV. 😹

Before I took my lunch, I had loose bowels twice. 💦And even though it went out, my stomach is still hurting. I was late for lunch. The lunch for today is 100g rice, tofu and egg, shuumai, cucumber salad, and tea. I ate it all except the cucumber salad. I am afraid to eat raw food yet. I took the noon dosage of the medicine for LBM.

It seems that the medicine is not effecting. 😰I tried to ignore the pain by studying but I can’t concentrate.  I had another loose bowel, and my stomach really hurts that I want to cry. 😣 I reported this to my nurse, and then Nagatsuji Sensei came to check on me. He said that he will be scheduling the CT scan tomorrow, and it depends on the result if we can take out the IV. 😱 Then he also said that I can try to take Ririka, and see if it can take away the pain.

Ririka did make the pain go away, 👍but my stomach is moving then I had another loose bowel again. I am so tired and sleepy; 😫 I was taking a nap when Nagatsuji Sensei came in again for his late afternoon rounds.😴 I said that I am starting to feel pain again; he said that just in case, I can take the other painkiller though it is strong for the kidneys or since I still have an IV, I can use the IV type painkiller. I was so lucky that he is on duty today.

At around 6:00 pm JST, I am afraid to eat dinner because my stomach really hurt and I am crying. 😿💦Though 3 hours only had passed, the effect of Ririka was gone. I have to ask for another painkiller.💊 I took it together with my medicines; 10mg of Predonine, 3 capsules of Prograf and 3 capsules of Cellcept, ferrous sulfate, anti-cholesterol medicine, half of a blood pressure medicine, and the medicine for LBM. 

I am praying that this will be gone tomorrow.🙏I am really having a hard time since Thursday last week. I hope that there is nothing serious, or else I cannot be discharged as expected.🙇

As early as 7:00 pm JST I am sleeping, then as instructed, my nurse woke me up at 8:00 pm JST to give me sleeping pills #1 & #2.💤

Good night for now.

September 16, 2018 (Sunday)

Good morning!🌞 After sleeping for more than 8 hours, I am feeling well. ✌Luckily I slept well without feeling pain in my stomach.

Since I didn’t eat well last night, I ate a piece of bread and ate almost all of my breakfast. It was 2 pieces bread, chicken meatloaf, margarine and marmalade, broccoli salad, yogurt, and tea. 😋Then my medicines; 10mg of Predonine, 3 capsules of Cellcept, anti-osteoporosis, anti-cholesterol medicine, half of blood pressure medicine, medicine for uric acid, intestinal medicine, Plaquenil, and medicine for LBM. After taking in that amount of food, luckily my stomach didn't hurt. I hope this will continue for the whole day.🙏

After my bath, I tossed my laundry in.👕👖 Then my nurse gave me the IV so that I will not be dehydrated due to LBM.

After my IV, I did trim my bangs; it grew so long that it obstructed my vision.💇

I don’t know if I will be happy or not for the lunch 😕because I did have LBM then sensei said that it was because of the oily donut, but the lunch for today is fried fish. 😂 Plus 100g rice, steamed green vegetables, Chinese cabbage salad, canned oranges, and tea. I only ate the fish, rice, and oranges. I am still afraid to eat fibrous vegetables because when I vomited yesterday, the vegetables were not digested. 💦I took the noon dosage of the medicine for LBM. I can notice my stomach is moving and hurting a bit but I can manage the pain; I hope this will go away.😔

I did notice that my bruises and hematoma are fading. My skin is getting better, and recently I am not having edema. 👏A very good sign! 💪It is just that my cheeks are still the same,😐 well this is the side effect of steroids, I can't do anything about this. 😂

After I folded my clothes, I spent my time updating my blog, talking to my family and studying until dinner.💭 The dinner is 100g rice, stir-fried vegetables and pork strips, boiled potatoes, spinach salad, canned peaches, 2 pieces biscuits, and tea. I ate almost everything. Then took my medicines; 10mg of Predonine, 3 capsules of Prograf and 3 capsules of Cellcept, ferrous sulfate, anti-cholesterol medicine, half of a blood pressure medicine, and the medicine for LBM.

Then I watched a Filipino comedy movie so that I can relax. 💻

I took sleeping pills #1 & #2 at 11:00 pm JST.

I am thanking God that I got better today and praying for a good day tomorrow!🙇

Good night for now.

September 15, 2018 (Saturday)

I woke up early in the morning due to stomach ache. 💦I rushed to the toilet 💨and I had a loose bowel movement. Again?!😰 This time it was really water like bowel. My nurse came in for my special blood test. The result of this blood test will let Nagatsuji Sensei decide if he will permit me to go out today.💭 If my white blood cell count will go down once again, then I cannot go out and visit my house. 

My stomach really aches and I also started vomiting. 😿What’s worse, it happens at the same time. Defecating and vomiting at the same time is so tiring that my legs are shaking.😨 It continued up to late morning. I called my nurse and she said that there is no painkiller for loose bowels, and she said that it is better to flush out the virus. 😓

I asked my nurse to bring my food to my room because I can’t seem to go and eat at the canteen. Starting today my breakfast will be bread and yogurt, but I can’t seem to eat because when I tried to drink hot tea, my stomach really hurt. 😣But I have to drink my medicine 10mg of Predonine, 3 capsules of Cellcept, anti-osteoporosis, anti-cholesterol medicine, half of blood pressure medicine, medicine for uric acid, intestinal medicine, Plaquenil, and medicine for LBM. I can’t seem to understand, I am taking medicine for LBM but I having one now. Huhu! After that, I vomited. I vomited so much that the lunch from yesterday came out, and I think the medicines too went out.😱 I told my nurse about it.

The nurses are concerned and wouldn’t like me to have a hot bath; I said that I think I cannot keep up with the smell because I vomited so much. I still managed to take a shower.

Then Nagatsuji Sensei came in to see me. He said my stomach is used to hospital food which is little to no oil food and donuts are fried food, I over ate oily food plus the donut that I choose was with pudding inside. 😶Next time I should pick which food should I eat the one with less oil. He also handed me the result of the blood test. As per result, the white blood cell count still decreased 😢 so he will not let me go out, because I will be prone to infection. I also said that I cannot go out at this state. I have no power in my body and I can’t seem to stop the vomiting and defecating. Nagatsuji Sensei recommended for me to have IV so that I will not be dehydrated. And via IV, I will be having anti vomiting shots and I have to have my 10mg steroid shot💉because steroids should not be skipped. he also recommended to have a stool test.

The lunch was brought in to my room. It was 100g rice, okonomiyaki, boiled eggplant, green vegetable salad, and tea. I only ate the okonomiyaki.💦 I have to eat something unless my stomach will hurt too. I took the noon dosage of the medicine for LBM.

Somehow after lunch, I had LBM once. And the pain in my stomach decreased. I was relieved and I slept. I was so tired that I slept the whole day.😴

My nurse woke me up in time for her rounds and she brought my dinner. The dinner is; 100g rice, barbecued beef, sautéed rice noodles, cauliflower salad, canned peaches, strawberry flavored pudding, and tea. I only ate some of the meat, rice noodles and some fruit. At least the volume of my intake is increasing. Then I took my medicines; 10mg of Predonine, 3 capsules of Prograf and 3 capsules of Cellcept, ferrous sulfate, anti-cholesterol medicine, half of a blood pressure medicine, and the medicine for LBM.

Then after that, I slept again.😴 It was like I am really tired and I want to sleep and sleep more.😫 My nurse woke me up when she handed my sleeping pills #1 & #2 at 10:00 pm JST, but I insisted to drink it at that time.

So I will continue this sleep and hoping that tomorrow will be a good day and I will be cured. I hope this will not affect my discharge date.

Good night every one.💤